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Are you looking for information on something in particular?

If you can't find it by clicking on our search button, please call us on

9420 7203 or email ddcwa@ddc.org.au

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PEER SUPPORT GROUPS IN PERTH METRO AND REGIONS

Would you like to find out more about peer support groups in WA?

 

Are you looking for a service provider?

Click here to find:

- the link to the list of disability service organisations which provide service on behalf of Disability Services Commission, sorted by region: REGION

- the list of services registered to provide services under NDIS in our State: WA

Are you interested in participating in research projects?

 

 

 

 

Telethon Kids Institute has developed a questionnaire to measure 'quality of life' in children with Down Syndrome.

They are seeking parents with a school aged child or adolescent with Down syndrome to road test their new questionnaire.

Siblings Australia is running a project, "Creating Capacity: Support for Adult Siblings Project" to build the capacity of siblings to understand the NDIS and to support their brothers and sister with disbility in the transition to the NDIS environment.

A reference group is being set up to guide the implementation of the project, and the group will oversee the governance and help maximise outcomes for siblings, people living with disability and their broader families in the light of the NDIS.

If you would like to find out more about this project, or be part of the reference group:

  

 

Click on the image above to read the report....

"The lives of people with disability are often secret lives. We are routinely segregated and isolated from our non-disabled peers – we live, work and play in places which are not often frequented by those without disability. Often, we are lonely. If we do not have families, paid staff are sometimes the only people in our lives. We are shut out by barriers to participation in Australian life, and shut in when we are hidden in institutional settings."

(Report authors Samantha Connor and Ben Keely)

The Peer Connect website is for people living with disability, their families and supporters.

The website has information about having choice and control in your life, the NDIS, connecting with Peer Support Networks and getting involved with your community.

www.peerconnect.org.au/

 

Duchenne Foundation in WA have published a great new story for children called "That's What Wings Are For". Part proceeds from sales of the book will go to the Duchenne Foundation.

Read more about it here, including an author interview 

  

 

 

 

 

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Peer Support Groups Supported By DDWA

 

Since 2015 the National Disability Insurance Agency has provided funding for DDWA to support more than 20 groups.

The primary aim was to enhance the groups to support their members to become more informed about the NDIS. 

The groups continue to connect and work through issues raised about NDIS, and share support generally.

 

 

If you are interested in finding out more about any of the groups below, the contact details can be found if you click here for a PDF version

or here for a WORD version.

 

 

Angelman Syndrome - Metropolitan

Families of children and adults with Angelman Syndrome

 

Save our Sons - Metropolitan (formerly the Duchenne Foundation)

People and families of people with Duchenne Muscular Dystrophy

 

Valued Lives - Hills Area - East Metropolitan

People with disabilities and their families who live in the NDIS Trial Site / Hills Area

 

Valued Lives - Cockburn - South Metropolitan

People with disabilities and their families who live in the Cockburn area and surrounds

 

Valued Lives - Durham Road - Bayswater/Bassendean

Families of children and adults with disabilities in the NDIS trial extension area

 

Wongan Hills Families - Wongan Hills and Wheatbelt 

Families of children and adults with suport needs who work together to access therapies, share information and support each other.

 

Merger of Minds - Fremantle

People with complex communication needs and their families and supporters

 

Merger of Minds - Broome

People with complex communication needs and their families and supporters 

 

Sibswest - Perth metropolitan and Statewide 

Siblings of people who have disability supports and/or who live in accommodation services

 

Foster Families Southwest / Bunbury FASD

Families and carers of children and adults with Foetal Alcohol Spectrum Disorder - looking at what supports are available and how to access them.

 

DisAbility Review - Statewide

Facebook Group, people with cerebral palsy and other people who want to find out about services and how to self-direct supports

 

Young Self Managers - WAiS - Metropolitan

People with disabilities learning to manager their funds and access supports of their choice.

 

Microboards Group - WAiS

Small networks of people who are dedicated to supporting a person and working together to manage funds and supports.

 

Host Families - Perth Metropolitan

Host families who welcome a person into their home and provide a home and family environment

 

Joondalup Autism Mums - Perth Northern Suburbs

Families of children/adults with autism or other disabilities

 

WA Deaf Community Group - Perth Metropolitan

A group of deaf people who discuss services available; and the NDIS; and options especially regarding interpreting for inclusion

 

CARD - Caring About Residents with Disabilities Perth Metropolitan

Families/carers of people who are in supported accommodation / residential care

 

Russell Family Foetal Alcohol Disorders Association Support Group WA - Perth Metropolitan 

Families and Individuals seeking information and hands on help for people affected by Foetal Alcohol Spectrum Disorder

 

Muslimability - Perth Metropolitan

Families / carers and people with disability who are Muslim

 

Disability Access for Aboriginal Families

Aboriginal people with disabilities and their families/carers/community