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Are you looking for information on something in particular?

If you can't find it by clicking on our search button, please call us on

9420 7203 or email ddcwa@ddc.org.au

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PEER SUPPORT GROUPS IN PERTH METRO AND REGIONS

Would you like to find out more about peer support groups in WA?

 

Are you looking for a service provider?

Click here to find:

- the link to the list of disability service organisations which provide service on behalf of Disability Services Commission, sorted by region: REGION

- the list of services registered to provide services under NDIS in our State: WA

Are you interested in participating in research projects?

 

 

 

 

Telethon Kids Institute has developed a questionnaire to measure 'quality of life' in children with Down Syndrome.

They are seeking parents with a school aged child or adolescent with Down syndrome to road test their new questionnaire.

Siblings Australia is running a project, "Creating Capacity: Support for Adult Siblings Project" to build the capacity of siblings to understand the NDIS and to support their brothers and sister with disbility in the transition to the NDIS environment.

A reference group is being set up to guide the implementation of the project, and the group will oversee the governance and help maximise outcomes for siblings, people living with disability and their broader families in the light of the NDIS.

If you would like to find out more about this project, or be part of the reference group:

  

 

Click on the image above to read the report....

"The lives of people with disability are often secret lives. We are routinely segregated and isolated from our non-disabled peers – we live, work and play in places which are not often frequented by those without disability. Often, we are lonely. If we do not have families, paid staff are sometimes the only people in our lives. We are shut out by barriers to participation in Australian life, and shut in when we are hidden in institutional settings."

(Report authors Samantha Connor and Ben Keely)

The Peer Connect website is for people living with disability, their families and supporters.

The website has information about having choice and control in your life, the NDIS, connecting with Peer Support Networks and getting involved with your community.

www.peerconnect.org.au/

 

Duchenne Foundation in WA have published a great new story for children called "That's What Wings Are For". Part proceeds from sales of the book will go to the Duchenne Foundation.

Read more about it here, including an author interview 

  

 

 

 

 

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What is Side by Side?

Side by Side is the name of DDWA's program for families who have a family member with disability and who has behaviour which is at times challenging.

Side by Side was co-designed by families, for families and as a strengths based program it aims to build resilience, knowledge, friendship and support.

 

 

Side by Side Workshops

Over the past few years DDWA has held many workshops and information sessions around our State exploring ways to understand challenging behaviour.

Jacquie Mills, Joanne Nunn, Maggie Visser and Jodie Campbell are some of the Side by Side family members who have presented their own stories and some strategies which have worked for their families. We are often joined by Craig McIver and Debbie Lobb, from Disability Services Commission, who have years of experience and expertise in the area of positive behaviour support.

At these forums attendees share their own experiences and strategies for positive behaviour support.

These workshops and forums are always very well attended - often the demand exceeds the venue capacity - so we try to hold as many sessions as possible. 

We are planning these right now so please register your interest and let us know if you would like to be part of this, or if you would like to find out more about icebergs and green zones!

Please click here to register your interest

 

Image provided by Craig McIver and Debbie Lobb, DSC

 

 

 Image provided by Craig McIver and Debbie Lobb, DSC

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

   

  

Watch the presentations

Videos of the presentations from the Come To Our House conference are on our You Tube channel:  DDWA Inc 

 

 

 

  

Side by Side has a closed facebook page for families who are interested in connecting to the Side By Side Group. To find out more information contact Bron Pike on bronwyn.pike@ddc.org.au 

  

Volume 1: Click on image to open and read   

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

  

Volume 2: Click on image to open and read

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Positive Behaviour Framework

The Positive Behaviour Framework was launched in 2009 by Disability Services Commission. 


Vision: To help people with disability, their families and carers who share experiences of challenging behaviour1 to have a better life within the community.

Mission: Building and supporting contemporary person centred behaviour support options within the community.


Side by Side

From April 2012 to late 2013, Developmental Disability WA worked together with families to co-design a family partnership program. The program became known as the Family Mentoring Project and later as SIDE BY SIDE.

The target people for whom Side by Side was developed was very specific – families of children with disability (young or adult) whose behaviour can be seen as challenging.

In 2014 the Side by Side project received additional funding so it could recommence, and today we want to hear from:

 -  Anyone who is interested in providing support to families. We want to hear from people who have lived experience with someone whose behaviour can be seen as challenging.

 - Anyone with a family member who has challenging behaviour and is looking to be supported by a family through the Side by Side project.  

 We will be continuing our partnership with Youniverse whose work in Is There A Better Way training will complement our work in supporting families.

You can read the evaluation report of work undertaken 2012-13 here.

 

November 2014:

Read more about the Positive Behaviour Framework Disability Sector Update of November 2014 here. 

The Positive Behaviour Framework forum took place on 26 June 2014 at Technology Park in Bentley and was attended by more than 100 people.

The Code of Practice for the Elimination of Restrictive Practices is part of the Positive Behaviour Framework. It should be read in conjunction with other Positive Behaviour Framework documents such as:


 

September 2014:

Watch a short video about Side by Side which features some of the family members and facilitators:

SIDE BY SIDE VIDEO 

 

 

 click to open and read the Side by Side brochure

 

Families have said:

 “Being a part of this program has made an incredible difference to our family.  I was feeling isolated and felt overwhelmed most days. I have four children, one has severe Autism. His behaviour affects our family life, especially his siblings."

"I was feeling desperate and that’s when I decided to contact the Family Mentoring Project (now Side by Side) co-ordinator and make some changes, all for the better. My mentor gave me insight and hope. It changed my view on our family life. We are able to share information and emotions without prejudice. I have gained knowledge, confidence and very importantly friendship. It really is a fantastic and inspiring project that I would recommend to other families.”

“...it’s great to support and be supported at the same time”

Read more here...

For further information about Side by Side contact Bron Pike at Developmental Disability WA : 9420 7203 or bronwyn.pike@ddc.org.au


1 "...behaviour of such an intensity, frequency or duration that the physical safety of the person or others is likely to be placed in serious jeopardy, or behaviour which is likely to seriously limit use of, or result in the person being denied access to, ordinary community facilities” (Emerson, E. (1995) Challenging Behaviour. Analysis and Intervention in People with Learning Difficulties. Cambridge: Cambridge University Press.)