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DDWA thanks the following members for their ongoing support:









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Do you or someone you know use assistive technology? 

AT Chat is a peer to peer information and communication hub

created by people with disability for people with people with disability. 

See video here

AT Chat is being launched at a party on 

Friday 13th October 4.30pm-8.00pm

click on the flyer below for more details





DDWA is a not-for-profit organisation and all donations over $2 are tax deductible.

Your donation will contribute towards

- more workshops, information sessions and training for individuals, their family members and the people who support them 
- more resources being developed for families and professionals 

 - more advocacy and support for people in our community

- more advocacy and representation to the decision makers on the issues you let us know about and work on with us

Please get in touch if you are interested in supporting or sponsoring the work of DDWA.



Would you like to find out more about peer support groups in WA?


Are you looking for a service provider?

Click here to find:

- the link to the list of disability service organisations which provide service on behalf of Disability Services Commission, sorted by region: REGION

- the list of services registered to provide services under NDIS in our State: WA

Are you interested in participating in research projects?


Click on the image above to read the report....

"The lives of people with disability are often secret lives. We are routinely segregated and isolated from our non-disabled peers – we live, work and play in places which are not often frequented by those without disability. Often, we are lonely. If we do not have families, paid staff are sometimes the only people in our lives. We are shut out by barriers to participation in Australian life, and shut in when we are hidden in institutional settings."

(Report authors Samantha Connor and Ben Keely)

The Peer Connect website is for people living with disability, their families and supporters.

The website has information about having choice and control in your life, the NDIS, connecting with Peer Support Networks and getting involved with your community.


Duchenne Foundation in WA have published a great new story for children called "That's What Wings Are For". Part proceeds from sales of the book will go to the Duchenne Foundation.

Read more about it here, including an author interview 






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You can be part of these research projects and contribute to positive change by sharing your experiences and opinions. 



7 September 2017 - Survey closes Monday 11 September

Sibling Australia is carrying out an important 'mapping' project, to determine

1) what is hapneing around Australia in terms of sibling support

2) the support needs of siblings and

3) what gaps exist in sibling support

The survey links are below:

If you 'like' the Siblings Australia Facebook page , you can share from there too. Kate Strohm welcomes any comments/queries you may have - via email or phone 0408720558.


6 September 2017

OCD, Autism, Adolescents and Online Treatment Program

Does your teen have autism and obsessive compulsive disorder? Curtin University researchers are looking for families with children aged 12- to 18-years who have a diagnosis of ASD, as well as symptoms including repeated, unwanted, thoughts or images, and/or compulsive behaviours such as counting, checking or cleaning, that are completed for fear of something bad happening.

We are investigating if an online treatment program with face-to-face support can be helpful for adolescents with both autism spectrum disorder (ASD) and obsessive compulsive disorder (OCD). Online programs have been found to be helpful in reducing symptoms of OCD in children without ASD, however there has been little investigation into what is helpful for those with OCD and ASD. Additionally, we are investigating if participation in this program reduces stress in parents and improves family relationships.

The study involves several components:


  • an initial telephone interview with the caregiver, and the child,
  • an initial face-to-face meeting,
  • participation in the online program, which is a weekly commitment for 8 weeks
  • fortnightly face-to-face sessions, and a one-month follow up appointment


Parents have the opportunity to comment through the online program and during personal meetings, and may include comment of the childs progression, clarifying steps in the program, or commenting on changes observed in the child and the family unit.

You can read more about the research project here.

Please contact Master of Clinical Psychology trainee Lisa Wallace who is conducting this research or contact the Curtin Health and Wellbeing Centre 9266 1717 to be included in this research. (Ethics approval HR45/2013)



6 September 2017 

CLOSING 15 October 

Motor Characteristics and Educational Opportunities of Children with Autism

Do you have a child with autism aged between 8-12?  Do you want to contribute to research concerning the education of children with autism? 

If you are interested in this research, you are invited to complete a short survey.

Once completed you will then have the opportunity to go into the draw to win a $50 Coles Group voucher to thank you for your time.

Further information concerning ethics approval, purpose of the research and who to contact should you have any questions are available in the attached letter. Click to open and read.

Please click on the picture (you may need to press control) to begin the survey which should take no longer than 20 minutes to complete.

The survey closes on the 15th October 2017.

Click on the image to start the survey




Find out more about this research here

Click on the image to enlarge






























20 July 2017

DSS:  National Disability Strategy 2016 Progress Report Stakeholder Survey 

The Department of Social Security want to hear your thoughts about disability policy in Australia.

Are you a person with disability, a family member, a carer, or are you just interested in the rights of people with disability?

DSS want to know what you think about the lives of people with disability in Australia. This may include questions about things like health care, employment and access to the local community for people with disability.

How have things improved in the last two years?  This feedback will help DSS to understand what areas need to improve under the National Disability Strategy.

This survey closes on 14 August 2017.

Click on the picture to access:




21 June 2017


Centre for Children and Young People 

Survey for young people  

This survey is for young people with disability. It is about what helps you to feel safe, and be safe.

If you have 10 minutes, they would love to hear from you!

  • What helps you to be safe?
  • Will you tell about your ideas about safety?  

  You can share what you think by doing the Centre's survey. Click here to start.

 Survey for supporters  

  • Are you a family member, friend, support worker or advocate of a young person with disability?
  • Have you got some ideas about what helps them to feel, and be, safe?

The Centre for Children and Young People are doing research about what helps young people to feel safe, and to be safe.  If you have 10 minutes, they would love to hear from you!  You can share what you think by doing the Centre's survey here.

Dr Sally Robinson is contactable here.

Background details: 

The Safety Project is research being conducted by the Centre for Children and Young People at Southern Cross University, with the UNSW Social Policy Research Centre, People with Disability Australia and Children with Disability Australia.

Dr Sally Robinson and Meaghan Vosz are talking to young people with disability aged 16 - 25 across Australia about what safety means to them, and what helps them to feel and be safe.

In WA they talked with many young people and service providers to find out what 'being safe' means to young people with disability, and how we can better support them to be and feel safe. Sally also presented the Safe at School research conducted in by the Centre in 2014 in a seminar for parents, supporters and service providers held at Developmental Disability WA.




7 April 2017:

Relating, Dating and Intimate Relationship Viewpoints 

This is an online study to gather the viewpoints of young adults (18-30) with and without Autism regarding relating, dating and intimate relationships.


Overview: To gather the personal views of young adults on friendship, dating, and forming long-term relationships within an Australian cultural context.  We know this is a difficult area for everyone and we want specific feedback from people on the Spectrum because we do not know what areas are the most problematic. The aim of this study is to inform future relationship support programs to help address the unmet needs of young adults on the Autism Spectrum. The study involves sorting 36 statements on relating, dating and intimate relationships from most to least confident, takes about 5-10 minutes to complete and is de-identified to ensure privacy.


Participants need to be 18-30 years old, raised in a Western culture, identify as neurotypical or on the Autism Spectrum and be able to independently complete this online study.


For further information contact


Rachelle Quintner, Honours Curtin University



Bob Jackson and Include are asking parents of children with a disability included in mainstream classrooms and the students themselves where possible, to rate how well their school is meeting the Disability Standards for Education (2005) as well as the inclusiveness of their educational experience.  They are also looking for ratings by teachers and principals of their school, as well as ratings of others directly involved such as teacher aidesadvocates and visiting professionals

The link to the survey is below.  It only takes a few minutes to complete, and does not identify individual schools.  Please complete the survey and pass the link on to other families as well as teachers, principals and other relevant people.  The more people who complete the survey, the more valid the results.  Even though the Standards have been a legal requirement since 2005 they have never been formally assessed, so this will be the first opportunity to determine how well they are working across Australia.  

Brief information on the standards is included when you open the survey, but if you would like to read more about them click here:

The results will be published when completed, but if you include your email address in the survey, an individual update will be provided.

Thanks for your help with this important research.

Bob Jackson PhD, Bob Jackson PhD, Psychologist Adjunct Associate Professor Curtin University







Be part of the first Australian Autism Biobank

Telethon Kids are creating the first Australian Autism Biobank, which is a store of behavioural and biological information.

This project is being conducted across four Australian sites (NSW, OLD, VIC, & WA) and aims to collect detailed information on children with autism to find out more about the causes of the condition.

The Biobank project is a long-term approach towards establishing a strong autism research program in Australia contributing to national and international research.

Telethon Kids are hoping to recruit a large number of children with autism and their families for this project. 

For more information click on the flyer for more details.  Or, contact Dominique Cleary by phone on 08 9489 7721 or by email to