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Are you looking for information on something in particular?

If you can't find it by clicking on our search button, please call us on

9420 7203 or email ddcwa@ddc.org.au

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PEER SUPPORT GROUPS IN PERTH METRO AND REGIONS

Would you like to find out more about peer support groups in WA?

 

Are you looking for a service provider?

Click here to find:

- the link to the list of disability service organisations which provide service on behalf of Disability Services Commission, sorted by region: REGION

- the list of services registered to provide services under NDIS in our State: WA

Are you interested in participating in research projects?

 

 

 

 

Telethon Kids Institute has developed a questionnaire to measure 'quality of life' in children with Down Syndrome.

They are seeking parents with a school aged child or adolescent with Down syndrome to road test their new questionnaire.

Siblings Australia is running a project, "Creating Capacity: Support for Adult Siblings Project" to build the capacity of siblings to understand the NDIS and to support their brothers and sister with disbility in the transition to the NDIS environment.

A reference group is being set up to guide the implementation of the project, and the group will oversee the governance and help maximise outcomes for siblings, people living with disability and their broader families in the light of the NDIS.

If you would like to find out more about this project, or be part of the reference group:

  

 

Click on the image above to read the report....

"The lives of people with disability are often secret lives. We are routinely segregated and isolated from our non-disabled peers – we live, work and play in places which are not often frequented by those without disability. Often, we are lonely. If we do not have families, paid staff are sometimes the only people in our lives. We are shut out by barriers to participation in Australian life, and shut in when we are hidden in institutional settings."

(Report authors Samantha Connor and Ben Keely)

The Peer Connect website is for people living with disability, their families and supporters.

The website has information about having choice and control in your life, the NDIS, connecting with Peer Support Networks and getting involved with your community.

www.peerconnect.org.au/

 

Duchenne Foundation in WA have published a great new story for children called "That's What Wings Are For". Part proceeds from sales of the book will go to the Duchenne Foundation.

Read more about it here, including an author interview 

  

 

 

 

 

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ADVOCACY

Australia is a party to the Convention on the Rights of Persons with Disabilities 

This is one of seven core human rights treaties to which Australia is a party.

Human rights are defined in the Human Rights (Parliamentary Scrutiny) Act 2011 as the rights and freedoms contained in the seven core human rights treaties to which Australia is a party. 

As part of Developmental Disability WA's work in systemic advocacy, we work with our members and others to uphold these human rights and inform decision makers about priorities for the rights and needs of people with intellectual and other developmental disability and their families.

If you would like to be part of the voice to inform decision makers,

- through adding your views in surveys

- taking part in research

- applying for a grant to further your activities (where available)

- making, or contributing to, a submission

- appearing before a parliamentary or other committee or forum

or having your say any other way, then please read on, or contact us to find out more.

THE FUTURE OF ADVOCACY FUNDED BY THE NATIONAL DISABILITY ADVOCACY PROGRAM (NDAP)

DDWA made a submission to the Department of Social Services, which administers NDAP, regarding the future of advocacy funded by NDAP.

DDWA is not currently funded by NDAP, nor have we been in the past, but we strongly support moves to strengthen and sustain a national disability advocacy sector and the individual organisations within it, as well as State based organisations of which DDWA is one.

Power imbalances exist and advocacy needs to address this power imbalance. Complaints mechanisms are accountability mechanisms but without advocacy there is fear for the consumer who understands that there is a power imbalance and that there can be consequences for speaking up. 

Individuals seeking advocacy should not be turned away because an organisation or agency does not have capacity to support them. 

We also believe Government and academia in particular would be disadvantaged if they were to lose the direct links to individuals which advoactes and agencies provide them in order to progress their policy and research work. Advocates and advocacy organisations are critical brokers also in supporting Government when Government needs to hear direct from their constituency. We ensure individuals families, carers supporters and others have a voice in communicating their experiences and expertise. 

The review of NDAP is not expected to be completed until mid 2017, when there will be formal announcement of the plan for a reformed NDAP.

Click on the button below if you would like to read our submission...



Sibswest is a peer support network founded in 2015 in Perth, for adult Western Australian siblings of people living with disability.

Through the NDIS Disability Support Organisations Project, DDWA granted SibsWest funding to hold forums and report on the importance of sibling relationships within the context of the NDIS.

The forums also looked at current supports and services currently available in WA and how they engage with siblings.

Read the report here: Sibswest Focus Group Forums Report 2015

Visit the SibsWest website at www.sibswest.com.au

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Activ invite people to join Service Advisory Committee

Click on image to enlarge

Activ has developed a Service Advisory Committee that reports to their Board. The Committee follows the functions of the Board and is a safe environment for families/individuals to gain exposure to Board process without the risk associated with taking a directors role.  This is a good opportunity for people looking to increase their skills and confidence to step into roles like Boards, and who are looking to provide their valuable lived experience of disability to Boards in the future, while adding their knowledge to assist with the development of the disability sector in the meantime. 

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 The Ministerial Advisory Council on Disability (MACD) 

  

The 14 member Ministerial Advisory Council on Disability provides independent advice to the Minister for Disability Services on a range of issues affecting West Australians with disability, their families and carers. The Council is comprised of people with disability, family members and/or carers, advocates, service providers and others with knowledge and expertise of disability. Council members are appointed by WA Cabinet.

  

More information about the Ministerial Advisory Council and what it is mandated to achieve is on the MACD website.

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